6 mai 2020 - Tripping On Air

Jour : 6 mai 2020

Je vous veux dans mon équipe de la Marche SP!

Bien avant mon diagnostic de sclérose en plaques (SP), la seule équipe que j’aurais pu décemment diriger aurait été une bande de geeks avec rien

6 mai 2020

Lire la suite

SUIVRE SUR INSTAGRAM (EN ANGLAIS)

Paris. Last year. An (almost) perfect pony I didn’t have to struggle to execute.

Fast forward: my core strength is waning and my arms do what they want. It takes 10 minutes, 2 pillows and Olympic-level contortion just to get my locks into a mostly messy bun 👱‍♀️

MS progression isn’t always about MRI results. It’s the slow, insidious losses, the quiet ways your body rewrites the rules.

What’s your ponytail test? The small thing that flags (potentially) big changes?

#thisIsMS

I’ve been traveling so much this year and I coul

I’ve been traveling so much this year and I couldn’t do it without a lot of planning and pacing.

This Rollator by @rollzint converts to a transport chair, so I can walk as I’m able and get a push when needed.

tbh I’m doing a lot more rolling than walking lately. I stood up for this pic and then sat my ass right back down. It’s probably time for a scooter but the decision/process is overwhelming and procrastination prevails.

In the meantime I am grateful to be out in the world, touring my book, seeing friends and family, even if it means spending tired hours in hotel rooms while everyone else is out having fun (like right tf now).

Happy Thanksgiving, Canada 🍁 What are you grateful for?

#fallosophy #thisIsMS

I didn’t choose the still life. The still life c

I didn’t choose the still life. The still life chose me 😘

#thisIsMS

ID: Ardra sits in a transport chair with the blanket she ‘borrowed’ from the hotel, looking like a 19th century baddie.

Whoever left their beer that close to her foot has a poor understanding of MS spasticity. These legs do what they want 🦵

I am pumped to be a mentor for @thewritersunionofc

I am pumped to be a mentor for @thewritersunionofcanada exciting new program for emerging Canadian writers from the Deaf and/or disabled community! 🤩

Mentee applications are open now until October 24. Go to: writersunion.ca/creating-mentorship-for-writers-with-disabilities

Apply now to work with me or one of these amazing authors @jesbattis @conyerclayton @leche_flan__ @paola_o_ferrante @poetgerby @mirandanewman @leatarantowrites @leannetoshiko 📕 ✍️

I can’t wait to read your stories! 😍

📸Jes Battis by Devin Wilger, Conyer Clayton by Curtis Perry, Therese Estacion by Isabelle Côté, Paola Ferrante by Rob Skuja, Ardra Shephard by Alkan Emin, Tea Gerbeza by Ali Lauren

ID: Promo graphic with author photos for TWUC 2025 Creating Mentorship for Deaf and Disabled Writers

Thank you @wpgthinair for hosting me last week. Fr

Thank you @wpgthinair for hosting me last week. From authors to readers to volunteers, I have been meeting the most incredible people this year.

Like, the impossibly cool author and @newyorkercartoons @gabrielle.drolet whose memoir LOOK MA NO HANDS is something you NEED to read 🤩

And the absolutely lovely @theliannz Add her debut novel JULIE CHAN IS DEAD to your tbr stacks. It’s SO good.

Thanks to everyone who came out to see me and to everyone who has been reading and sharing Fallosophy. It’s a joy and a thrill to connect with you all.

Barb, if you’re seeing this, I’m so bummed that we didn’t think to get a picture but I’m so glad you came! 🙏

#bookTour #fallosophy #thisIsMS

Pink! Dress: @katespadeny Rollator: @rollzint

Pink!

Dress: @katespadeny
Rollator: @rollzint
Attitude: my own

#fallosophy #thisIsMS

#sponsored Behind the scenes of Season 2, Episode

#sponsored Behind the scenes of Season 2, Episode 3 with @mykrewcanada 😍🎥🎙️an inclusive MS community full of super cool people who get it 🙌

More than just another shoot, spending the day swapping stories, asking questions, and feeling seen nourished my soul 🖤

🎬Catch season 2 at the link in bio and join the conversation!
@mykrewcanada #NovartisPartner #fallosophy #thisIsMS

Shout out to all who celebrate 🥂 #cleanHairDa

Shout out to all who celebrate 🥂

#cleanHairDay #thisIsMS