Dysesthésie Archives - Tripping On Air

Catégorie : Dysesthésie

8 choses à faire quand la SP rend l’hiver plus pénible

On entend beaucoup parler de l’impact de la chaleur sur la sclérose en plaques (SP). De fait, trempez-moi dans un bain chaud et je suis

19 novembre 2018

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SUIVRE SUR INSTAGRAM (EN ANGLAIS)

Last year I went to a Xmas concert and was a crank

Last year I went to a Xmas concert and was a cranky b before the show even started bc I had insisted on walking from the cab to my seat. 🚕
The crowd was jostling me, the seats were too far for my tired legs. I was overwhelmed, exhausted and emotional. 😭

Last night I went to a concert at the same venue but we took Optimus Prime, my convertible Rollator/transport chair.

Instead of walking, I got a push and was a much nicer person because of it. We even had time for a glass of champagne before the show and I didn’t have to worry about my balance bc I was already sitting down 🥂 😉

December is a marathon. Do whatever you need to show up and maybe even enjoy yourself. Accepting help is not the same as resignation.

#decembering #thisIsMS

I’ll always be a print-magazine girlie, so it is

I’ll always be a print-magazine girlie, so it is extra exciting to be featured in @chatelainemag Joy Issue 🎄 On newsstands now!

What was your most joyful moment of 2025?

#magazine #joy #thisIsMS

It was an honour to talk about Fallosophy with the

It was an honour to talk about Fallosophy with the Canadian Club of Halton and they did their best to accommodate me 🙏

On the other hand, @theoakvilleconferencecenter was unwilling to supply a ramp and renting one would have cost the non-profit Canadian Club an outrageous $1750

So, I could choose to present from the floor, where it would be hard for the audience to see me, or I could roll the dice on the 12” platform.

My husb and @byacre Rollator helped me up to the stage but getting off is trickier and less safe so I went down on my bum 😳

Safer but not exactly classy. Not super dignified either, but we do what we have to do.

The Oakville Conference Centre claims it is an accessible venue and this should extend to the stage. Otherwise I fear that next time disabled presenters just won’t be invited.

#accessmatters #fallosophy #thisIsMS

(much) later-gram bc I live in the MS Time Zone 🥱

Whistler is like living in a Christmas card and @whistlerwritersfestival was a dream.

Thanks for inviting me to share Fallosophy: My Trip Through Life with MS 🙏

#booktours #canlit #thisIsMS

Tilly gets a well-deserved shout-out at @whistlerw

Tilly gets a well-deserved shout-out at @whistlerwritersfestival 🐶🖤

#fallosophy #thisIsMS

I spent my extra hour at the @whistlerwritersfesti

I spent my extra hour at the @whistlerwritersfestival 😍

What an incredible, inspiring weekend. Thank you @armchairbookswhistler and the Whistler Writers Festival for hosting me.

Massive photo dump once I get home and over jet lag 😳

What are you reading this weekend? Drop it in the comments! #fallosophy 😉

#canLit #books #cozy #thisIsMS

I don’t wanna brag, but also, yes I do 😍Fallo

I don’t wanna brag, but also, yes I do 😍Fallosophy is nominated for a 2026 @forestofreadingprogram Evergreen Award!

Thank you to everyone who has read and loved this book 🥹

Be sure to check out my fellow brilliant nominees:

All The Parts We Exile by @yallaroza
Everything Is Fine Here by Iryn Tushabe
Horsefly by @mireillegagne1
It Must Be Beautiful by @katygies
Seventhblade by @lairdtoniawrites
The Tiger and the Cosmonaut by @eddyautomatic
Waiting for the Long Night Moon by @amandapetersauthor
What I Know About You by @ericchacour
Where the Jasmine Blooms by @zeinasleimanwrites

#canLit #thisIsMS

Cozy, cute slippers that help with dropfoot? I mus

Cozy, cute slippers that help with dropfoot? I must be dreaming 😍

Thank you @cadenseadaptive for gifting me these bomb slippers that have the same amazing technology as your game-changing sneakers.

5 stars for marrying style with function

All the stars in the sky if you ever end up making those knee high boots 😉

Use code Cozy10 for 10% off 🤩 👣

#adaptiveFashion #footDrop #thisIsMS