May 22, 2019 - Tripping On Air

Day: 22 May 2019

5-Ways-Hope-Can-Suck-When-You-Have-MS

5 Ways Hope Can Suck When You Have MS

Make a wish and then prepare to get burned. The problem with hope and MS After a particularly dismissive appointment with my interim, now former,

May 22, 2019 • 38 Comments

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It was an honour to talk about Fallosophy with the

It was an honour to talk about Fallosophy with the Canadian Club of Halton and they did their best to accommodate me 🙏

On the other hand, @theoakvilleconferencecenter was unwilling to supply a ramp and renting one would have cost the non-profit Canadian Club an outrageous $1750

So, I could choose to present from the floor, where it would be hard for the audience to see me, or I could roll the dice on the 12” platform.

My husb and @byacre Rollator helped me up to the stage but getting off is trickier and less safe so I went down on my bum 😳

Safer but not exactly classy. Not super dignified either, but we do what we have to do.

The Oakville Conference Centre claims it is an accessible venue and this should extend to the stage. Otherwise I fear that next time disabled presenters just won’t be invited.

#accessmatters #fallosophy #thisIsMS

(much) later-gram bc I live in the MS Time Zone 🥱

Whistler is like living in a Christmas card and @whistlerwritersfestival was a dream.

Thanks for inviting me to share Fallosophy: My Trip Through Life with MS 🙏

#booktours #canlit #thisIsMS

Tilly gets a well-deserved shout-out at @whistlerw

Tilly gets a well-deserved shout-out at @whistlerwritersfestival 🐶🖤

#fallosophy #thisIsMS

I spent my extra hour at the @whistlerwritersfesti

I spent my extra hour at the @whistlerwritersfestival 😍

What an incredible, inspiring weekend. Thank you @armchairbookswhistler and the Whistler Writers Festival for hosting me.

Massive photo dump once I get home and over jet lag 😳

What are you reading this weekend? Drop it in the comments! #fallosophy 😉

#canLit #books #cozy #thisIsMS

I don’t wanna brag, but also, yes I do 😍Fallo

I don’t wanna brag, but also, yes I do 😍Fallosophy is nominated for a 2026 @forestofreadingprogram Evergreen Award!

Thank you to everyone who has read and loved this book 🥹

Be sure to check out my fellow brilliant nominees:

All The Parts We Exile by @yallaroza
Everything Is Fine Here by Iryn Tushabe
Horsefly by @mireillegagne1
It Must Be Beautiful by @katygies
Seventhblade by @lairdtoniawrites
The Tiger and the Cosmonaut by @eddyautomatic
Waiting for the Long Night Moon by @amandapetersauthor
What I Know About You by @ericchacour
Where the Jasmine Blooms by @zeinasleimanwrites

#canLit #thisIsMS

Cozy, cute slippers that help with dropfoot? I mus

Cozy, cute slippers that help with dropfoot? I must be dreaming 😍

Thank you @cadenseadaptive for gifting me these bomb slippers that have the same amazing technology as your game-changing sneakers.

5 stars for marrying style with function

All the stars in the sky if you ever end up making those knee high boots 😉

Use code Cozy10 for 10% off 🤩 👣

#adaptiveFashion #footDrop #thisIsMS

Paris. Last year. An (almost) perfect pony I didn’t have to struggle to execute.

Fast forward: my core strength is waning and my arms do what they want. It takes 10 minutes, 2 pillows and Olympic-level contortion just to get my locks into a mostly messy bun 👱‍♀️

MS progression isn’t always about MRI results. It’s the slow, insidious losses, the quiet ways your body rewrites the rules.

What’s your ponytail test? The small thing that flags (potentially) big changes?

#thisIsMS

I’ve been traveling so much this year and I coul

I’ve been traveling so much this year and I couldn’t do it without a lot of planning and pacing.

This Rollator by @rollzint converts to a transport chair, so I can walk as I’m able and get a push when needed.

tbh I’m doing a lot more rolling than walking lately. I stood up for this pic and then sat my ass right back down. It’s probably time for a scooter but the decision/process is overwhelming and procrastination prevails.

In the meantime I am grateful to be out in the world, touring my book, seeing friends and family, even if it means spending tired hours in hotel rooms while everyone else is out having fun (like right tf now).

Happy Thanksgiving, Canada 🍁 What are you grateful for?

#fallosophy #thisIsMS