May 18, 2021 - Tripping On Air

Day: 18 May 2021

How Disability Benefits Can Make MS Suck Even More

MS is hard. The stigma and difficulty in accessing disability benefits and disability insurance can make MS even harder.

May 18, 2021 • 24 Comments

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Thanks to steroids and other factors, my MS bones

Thanks to steroids and other factors, my MS bones started turning to dust in my 40s #osteoporosis 💀

BUT THEN: I got a good endocrinologist. I had a course of zoledronic acid. I spent the last year mainlining calcium, vitamin d and vitamin k.

And guess what bitches. It’s working. Last year I had the skeleton of a 70 year old 🦴 Now my bones have the density of a 44 year old 💪 💪 💪 🤯

I have gone from omfg osteoporosis to mild osteopenia in ten months 🙏 (it is such a strange feeling to get good medical news for a change)

If you have MS you should be getting bone scans 🫵 Especially if you’ve had prednisone/solumedrol.

Look after your skeleton, Trippers. 😘

ID: me in a pink and white mini dress, rocking a rollator next to the sea

Rollator: @rollzint
Shoe: @cadenseadaptive
Bones: 🧀 ☀️ #zometa

MS means always being on the lookout for the neare

MS means always being on the lookout for the nearest bathroom 😬

ID: Ardra stands next to an abandoned toilet in a field next to the ocean. Sometimes you gotta take what you can get #thisIsMS

Thank you @scwrittenarts for hosting me this past

Thank you @scwrittenarts for hosting me this past weekend🙏

What a thrill to meet authors and readers and talk about my book, 📕 Fallosophy in such a beautiful place.

Special thanks to all the volunteers and my husb for pushing me up and around the scenic but challenging terrain ⛰️ 🌲 🖤

#fallosophy #canadianauthor #booksta

Such a treat to share the stage with author Deirdr

Such a treat to share the stage with author Deirdre Simon Dore and moderator @megzycole at the unbelievably beautiful @scwrittenarts festival this weekend.

Deirdre’s book A Reluctant Mother is dark and funny and awesome. Check it out! (Also, both our books start out on Halloween night. How cool is that? 👻)

ID: two authors dorking out and taking on-stage selfies before their presentation bc they’re so pumped to be here

2) me and Megan chilling in the book tent after signing copies of Fallosophy (including a 📕 that someone brought from the library 😵 so keep an eye out for that!)

3) the gorgeous open air theatre where the festival is held 🖤

#fallosophy #canadianAuthor #thisIsMS

I see you looking, @vancouverpubliclibrary Edition

I see you looking, @vancouverpubliclibrary Edition. 👀

Popped in to check on Fallosophy but it was checked out! 🤩 📚

#babesWithMobilityAids #thisIsMS

ID: Ardra’s turning heads with her convertible @rollzint outside the post-modern coliseum-style library.

Shoes: @cadenseadaptive
Dress: @bashparis
Bag: @roncypacks
Attitude: all mine

Flew @porterairlines to Vancouver yesterday and wa

Flew @porterairlines to Vancouver yesterday and was surprised to see a closet for personal wheelchairs inside the cabin 👍

But here’s the plot twist: I asked why I hadn’t been offered this space for my transport chair and was told they prefer to use it for cabin crew luggage.

50 points for saying the quiet part out loud, @porterairlines Minus a million points for following thru on accessibility initiatives.

Fortunately, Optimus Prime wasn’t damaged (always a concern when flying), tho for some reason he was soaking wet 🤔

#rightsOnFlights #thisIsMS

ID: Ardra looks out an airplane window at mountains thinking about how unrelenting advocacy is ✈️ 🏔️

It’s been a minute. MS is hard. #rallying #this

It’s been a minute. MS is hard.

#rallying #thisIsMS

ID: Ardra sips a pretty pink mocktail on a patio after spending multiple consecutive days indoors 😬

If it’s raining, I’m not going…unless it’s

If it’s raining, I’m not going…unless it’s from my door to the car. But it’s book tour szn and “indoor girl” isn’t always an option.

This @lululemon seated-fit rain poncho is cropped in the back and covers my knees while sitting. It’s lightweight, easy to get on and roomy enough for layers. Plus it’s super cute. And I got it on sale 🤩

#adaptiveFashion #lululemon #thisIsMS

ID: Ardra rolls thru the elements in transport chair mode bc holding an umbrella with a rollator is impossible ☔️ She’s looking cute in a tan raincoat @cadenseadaptive sneaks and @rollzint convertible transport chair