August 2017 - Tripping On Air

Month: August 2017

The 5 Frustrating Ways Lemtrada Didn’t Cure Me

The 5 Frustrating Ways Lemtrada Didn’t Cure Me I finished round 2 of Lemtrada 15 months ago and last week I was asked by MS

August 27, 2017 • 34 Comments

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Ten Reasons Why Chronic Illness Is One Big, Stupid, Joke

Lisa Walters of Damsel in a Dress, asked me to write a guest post for her popular blog about life with Lupus. Before she received

August 3, 2017 • 2 Comments

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Time to kill some bad-guy b-cells. 💉 ☠️ #

Time to kill some bad-guy b-cells. 💉 ☠️

#ocrevus #crapGap #thisIsMS

ID: infusion clinic, no makeup selfie. Not pictured: hot water bottle, blanket, coffee, rxbar, and overly ambitious book I won’t actually read because IV benadryl 😴

New episode drop. Link in bio. Tripping On Air pod

New episode drop. Link in bio. Tripping On Air podcast, wherever you get your pods.
@accessiblemediainc @prairievelo
#mobilityAids #rollator #MS #trippingOnAir #pod #newEpisode #disabilitylife #thisIsMS

Reasons to hate winter less: these earmuffs and my

Reasons to hate winter less: these earmuffs and my (adaptive 🙌) Lakesider @ugg boots

#earmuffs #ugg #adaptive #rollator #thisIsMS #OOTD #disabilityStyle #disabilityFashion #adaptiveFashion #babesWithMobilityAids #fMS #FUMS

ID: (1) Ardra stands with her @byacre Rollator wearing Ewok-sized earmuffs and white winter boots
(2) Ardra and golden-doodle Tilly are snuggled up. They’re both wearing coats and counting the days until spring. It’s 12.

Happy Awareness Month, Trippers. I hope someone bu

Happy Awareness Month, Trippers. I hope someone buys you a present.

#ImNotDrunkIhaveMS #theMoreYouKnow #msawarenessmonth #MSawareness #thisIsMS

If you know me, you know I always keep kleenex on

If you know me, you know I always keep kleenex on my person. It's up my sleeves, tucked in my boot, there's a folded up, gently used stash of tissues in every bag I own bc I always, and I mean ALWAYS have a bit of a runny nose.

After years of basically accepting my grossness, I finally saw an ENT who dx'd me with geriatric rhinitis.

Wait, what? GERIATRIC? Not technically, but MS has me aging in dog years. Apparently my snotty nose is caused by vasomotor abnormalities. 🤔 The same kind of over/under-reaction of my blood vessels that causes my freezing cold feet #becauseMS

MS or otherwise, I am thrilled to finally have a prescription that works. I haven't wiped my nose once today and I am luxuriating in the feeling of totally clear airways #breathe 🙏

Is anyone else living that kleenex life? Do you have a rare symptom story?

#thisIsMS #orIsIt? #geriatricRhinitis #kleenedLife #rareSymptoms

#someDays #thisIsMS

#someDays #thisIsMS

Long weekend plans: Read a little. Write a little.

Long weekend plans: Read a little. Write a little. Pancakes. 📖 ✍️ 🥞

Anyone else still keep a diary?

#diary #library #bookstagram

ID: a stack of Ardra’s diaries in front of her home library.