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Category: Lemtrada

The 5 Frustrating Ways Lemtrada Didn’t Cure Me

The 5 Frustrating Ways Lemtrada Didn’t Cure Me I finished round 2 of Lemtrada 15 months ago and last week I was asked by MS

August 27, 2017 • 34 Comments

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If you have MS you are not too young to have osteo

If you have MS you are not too young to have osteoporosis 😬

Treatment with steroids and other factors put us at higher risk of developing dusty bones which can make falls catastrophic ☠️

Get your bones scanned, Trippers. Maybe eat some cheese this Christmas. 🎄 🧀

#boneHealth #thisIsMS

ID: Ardra, seen here in last night’s makeup, receiving her annual infusion of zoledronic acid to treat her osteoporosis 👵🏻

We got stuck in the accessible elevator then had t

We got stuck in the accessible elevator then had to walk to the back alley to access the definitely haunted service elevator. (Which had a rickety too-steep ramp and a handful of unsafe steps but at this point I was unwilling to waste a full face of makeup and go home. I may have also been motivated by the promise of wine 🍷)

I powered thru. I had help.

Once inside, I sipped Merlot and snacked on canapés while elevator technicians were called to fix the problem. 😮‍💨

When we were ready to leave we were assured things had been tested and were working but THEN we got trapped again! 😳

We hauled ourselves back to the haunted elevator and waited for an uber in the freezing cold alley. 🥶

Just another day of doing what we do to keep showing up in the world.

#thisIsMS

MS Wrapped Top Genres: Canceling Plans, Missing D

MS Wrapped

Top Genres: Canceling Plans, Missing Deadlines, Yesterday’s Makeup

Most Loved Accesories: @rollzint @byacre @cadenseadaptive

Most Replayed: literal falls

Biggest Hit: no broken bones!

What’s your Top MS Genre for 2025? 🤔

(@spotify guessed my age as 85, so, it’s a vibe, Trippers 👵🏻)

#wrapped #fallosophy #thisIsMS #2025

Last year I went to a Xmas concert and was a crank

Last year I went to a Xmas concert and was a cranky b before the show even started bc I had insisted on walking from the cab to my seat. 🚕
The crowd was jostling me, the seats were too far for my tired legs. I was overwhelmed, exhausted and emotional. 😭

Last night I went to a concert at the same venue but we took Optimus Prime, my convertible Rollator/transport chair.

Instead of walking, I got a push and was a much nicer person because of it. We even had time for a glass of champagne before the show and I didn’t have to worry about my balance bc I was already sitting down 🥂 😉

December is a marathon. Do whatever you need to show up and maybe even enjoy yourself. Accepting help is not the same as resignation.

#decembering #thisIsMS

I’ll always be a print-magazine girlie, so it is

I’ll always be a print-magazine girlie, so it is extra exciting to be featured in @chatelainemag Joy Issue 🎄 On newsstands now!

What was your most joyful moment of 2025?

#magazine #joy #thisIsMS

It was an honour to talk about Fallosophy with the

It was an honour to talk about Fallosophy with the Canadian Club of Halton and they did their best to accommodate me 🙏

On the other hand, @theoakvilleconferencecenter was unwilling to supply a ramp and renting one would have cost the non-profit Canadian Club an outrageous $1750

So, I could choose to present from the floor, where it would be hard for the audience to see me, or I could roll the dice on the 12” platform.

My husb and @byacre Rollator helped me up to the stage but getting off is trickier and less safe so I went down on my bum 😳

Safer but not exactly classy. Not super dignified either, but we do what we have to do.

The Oakville Conference Centre claims it is an accessible venue and this should extend to the stage. Otherwise I fear that next time disabled presenters just won’t be invited.

#accessmatters #fallosophy #thisIsMS

(much) later-gram bc I live in the MS Time Zone 🥱

Whistler is like living in a Christmas card and @whistlerwritersfestival was a dream.

Thanks for inviting me to share Fallosophy: My Trip Through Life with MS 🙏

#booktours #canlit #thisIsMS

Tilly gets a well-deserved shout-out at @whistlerw

Tilly gets a well-deserved shout-out at @whistlerwritersfestival 🐶🖤

#fallosophy #thisIsMS