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Category: Lemtrada

The 5 Frustrating Ways Lemtrada Didn’t Cure Me

The 5 Frustrating Ways Lemtrada Didn’t Cure Me I finished round 2 of Lemtrada 15 months ago and last week I was asked by MS

August 27, 2017 • 34 Comments

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Up at 1am for a fire alarm 🚒 Up again at 5 for

Up at 1am for a fire alarm 🚒 Up again at 5 for my annual mri 😵‍💫

If anyone needs me, no you don’t 😴 #patientDays #thisIsMS

Did we drive 2 hrs just so I could visit a pink bo

Did we drive 2 hrs just so I could visit a pink bookstore? 🤔 Maybe.

Was it worth it? 💖 Obviously 📚 💕

#authorLife #thisIsMS

Make things accessible and don’t be weird 🤷‍♀️

#fallosophy #thisIsMS

If anyone needs me, I’ll be sitting in front of

If anyone needs me, I’ll be sitting in front of the freezer eating popsicles like it’s my job.

This kind of heat is hard on everyone but for ppl with MS, a symptom called Uhthoff’s phenomenon can really eff you up 🥵

Heat hijacks the MS nervous system turning minor glitches into full-on system failures. It’s not drama. It’s science. 🤔

Stay cool, Trippers. Rest isn’t lazy, it’s survival.

#thisIsMS

ID: screenshot of the weather app - all deep reds and oranges. Possibly a map of Hell.

Nothing says luxe like keeping your supplements in

Nothing says luxe like keeping your supplements in an antique wine box -
MS, but make it a vibe 🎩

How do you keep things chronically chic?

#fallosophy #thisIsMS

ID: pink peonies in a vase next to a long rectangular box full of things to keep my nervous system in check and my bones from turning to dust ☠️

Hypnosis for MS? Sounds woo, but the science check

Hypnosis for MS? Sounds woo, but the science checks out.

Link in bio for my review of @reveri app (and a sick discount 🤑)

#fallosophy #thisIsMS

If you could hypnotize your MS into chilling out,

If you could hypnotize your MS into chilling out, would you? 🤔

Same.

I tried self-hypnosis with a fancy Stanford doctor and lived to blog about it. Link in bio to find out what happened — and whether it’s worth trying (it is!)

#fallosophy #ImAlreadySleepy #thisIsMS

@reveri

Just a girl, standing outside a bookstore, asking

Just a girl, standing outside a bookstore, asking readers to come in and buy my book ☺️📚

Thank you @junctionreads and @typebooksjunction for hosting such a wonderful event. And thanks to everyone who came out. My only morning-after regret is that I didn’t get selfies with some long time readers 😭

#fallosophy #thisIsMS