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The 5 Frustrating Ways Lemtrada Didn’t Cure Me

The 5 Frustrating Ways Lemtrada Didn’t Cure Me I finished round 2 of Lemtrada 15 months ago and last week I was asked by MS

August 27, 2017 • 34 Comments

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Thanks to steroids and other factors, my MS bones

Thanks to steroids and other factors, my MS bones started turning to dust in my 40s #osteoporosis 💀

BUT THEN: I got a good endocrinologist. I had a course of zoledronic acid. I spent the last year mainlining calcium, vitamin d and vitamin k.

And guess what bitches. It’s working. Last year I had the skeleton of a 70 year old 🦴 Now my bones have the density of a 44 year old 💪 💪 💪 🤯

I have gone from omfg osteoporosis to mild osteopenia in ten months 🙏 (it is such a strange feeling to get good medical news for a change)

If you have MS you should be getting bone scans 🫵 Especially if you’ve had prednisone/solumedrol.

Look after your skeleton, Trippers. 😘

ID: me in a pink and white mini dress, rocking a rollator next to the sea

Rollator: @rollzint
Shoe: @cadenseadaptive
Bones: 🧀 ☀️ #zometa

MS means always being on the lookout for the neare

MS means always being on the lookout for the nearest bathroom 😬

ID: Ardra stands next to an abandoned toilet in a field next to the ocean. Sometimes you gotta take what you can get #thisIsMS

Thank you @scwrittenarts for hosting me this past

Thank you @scwrittenarts for hosting me this past weekend🙏

What a thrill to meet authors and readers and talk about my book, 📕 Fallosophy in such a beautiful place.

Special thanks to all the volunteers and my husb for pushing me up and around the scenic but challenging terrain ⛰️ 🌲 🖤

#fallosophy #canadianauthor #booksta

Such a treat to share the stage with author Deirdr

Such a treat to share the stage with author Deirdre Simon Dore and moderator @megzycole at the unbelievably beautiful @scwrittenarts festival this weekend.

Deirdre’s book A Reluctant Mother is dark and funny and awesome. Check it out! (Also, both our books start out on Halloween night. How cool is that? 👻)

ID: two authors dorking out and taking on-stage selfies before their presentation bc they’re so pumped to be here

2) me and Megan chilling in the book tent after signing copies of Fallosophy (including a 📕 that someone brought from the library 😵 so keep an eye out for that!)

3) the gorgeous open air theatre where the festival is held 🖤

#fallosophy #canadianAuthor #thisIsMS

I see you looking, @vancouverpubliclibrary Edition

I see you looking, @vancouverpubliclibrary Edition. 👀

Popped in to check on Fallosophy but it was checked out! 🤩 📚

#babesWithMobilityAids #thisIsMS

ID: Ardra’s turning heads with her convertible @rollzint outside the post-modern coliseum-style library.

Shoes: @cadenseadaptive
Dress: @bashparis
Bag: @roncypacks
Attitude: all mine

Flew @porterairlines to Vancouver yesterday and wa

Flew @porterairlines to Vancouver yesterday and was surprised to see a closet for personal wheelchairs inside the cabin 👍

But here’s the plot twist: I asked why I hadn’t been offered this space for my transport chair and was told they prefer to use it for cabin crew luggage.

50 points for saying the quiet part out loud, @porterairlines Minus a million points for following thru on accessibility initiatives.

Fortunately, Optimus Prime wasn’t damaged (always a concern when flying), tho for some reason he was soaking wet 🤔

#rightsOnFlights #thisIsMS

ID: Ardra looks out an airplane window at mountains thinking about how unrelenting advocacy is ✈️ 🏔️

It’s been a minute. MS is hard. #rallying #this

It’s been a minute. MS is hard.

#rallying #thisIsMS

ID: Ardra sips a pretty pink mocktail on a patio after spending multiple consecutive days indoors 😬

If it’s raining, I’m not going…unless it’s

If it’s raining, I’m not going…unless it’s from my door to the car. But it’s book tour szn and “indoor girl” isn’t always an option.

This @lululemon seated-fit rain poncho is cropped in the back and covers my knees while sitting. It’s lightweight, easy to get on and roomy enough for layers. Plus it’s super cute. And I got it on sale 🤩

#adaptiveFashion #lululemon #thisIsMS

ID: Ardra rolls thru the elements in transport chair mode bc holding an umbrella with a rollator is impossible ☔️ She’s looking cute in a tan raincoat @cadenseadaptive sneaks and @rollzint convertible transport chair