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Category: Lemtrada

The 5 Frustrating Ways Lemtrada Didn’t Cure Me

The 5 Frustrating Ways Lemtrada Didn’t Cure Me I finished round 2 of Lemtrada 15 months ago and last week I was asked by MS

August 27, 2017 • 34 Comments

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#sponsored #Sanofi_partner I’ve been travelling

#sponsored #Sanofi_partner I’ve been travelling my whole life—I love visiting new places, trying new restaurants and seeing the sights of a city like New York 🍎 🤩

Travelling looks different as my MS has progressed over the years, because there’s always #MoreToTheStory

I have to be mindful of my limits and have realized that it’s okay to ask for help, even when my symptoms can seem invisible.

I am my own best advocate while navigating the challenges of living with MS, and that includes making time and space for the things that I love even as my disability progresses.

Check out the link in my bio to learn more from @sanofi about the important discoveries in MS that might explain why some symptoms get worse over time despite a lack of relapses.

#thisIsMS #MS #MSawareness

Happy Hump Day, Trippers. What are you blowing off

Happy Hump Day, Trippers. What are you blowing off today?

#thisIsMS

Today’s infusion was only indirectly due to MS.

Today’s infusion was only indirectly due to MS. 🤔 Years of IV steroids for relapses caused me to develop osteoporosis in my early 40s and now I am receiving therapy to keep my prematurely old lady bones from turning to actual dust.

Get your bone scans, Trippers. 💀 #fallsRisk #thisIsMS and I guess #thisIsOsteoporosis too

PS according to my hat, it’s also Bring Your Dog To Your Infusion Day 🤦‍♀️ 🐶

Tripping on Air Gift Guide and (massive) giveaways

Tripping on Air Gift Guide and (massive) giveaways 🤩 COMING SOON! #thisIsMS

Stand, sit, walk, roll. Do whatever tf you need to

Stand, sit, walk, roll. Do whatever tf you need to live the life you wanna live. #thisIsMS

@katehewko @rollzint @ailledesign @roncypacks

Daydreaming about finding my upcoming memoir Fallo

Daydreaming about finding my upcoming memoir Fallosophy on the shelves of @shakespeareandcoparis the next time I’m in town. 📖 #thisIsMS 🖤

The Latin Quarter isn’t super accessible but the staff at S & Co were quick to pull out a ramp and help me navigate this amazing historic bookstore.

It’s still patio season when the restaurant has

It’s still patio season when the restaurant has blankets, outdoor heating lamps, and you travel with your own hot water bottle. MS makes me medically cold and I cannot be the only one. #ImAHumanReptile 🦎#whereAreMyColdGirlies #thisIsMS

I see you looking: Paris edition 👩‍🎨 #this

I see you looking: Paris edition 👩‍🎨 #thisIsMS