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Behind the scenes: my movie about life with MS.

I'm not gonna let the world tell me what disability is supposed to be and what it's supposed to look like. Nope. I don't accept

October 29, 2019 • 65 Comments

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Is it too early for a nap? Asking for a me (Tilly

Is it too early for a nap? Asking for a me (Tilly doesn’t need convincing)

MS fatigue is real 😩 Being alive is hard

ID: 🐕 Tilly is crashed out in emotional support nap mode. She’s clearly been thru something (my schedule?) and is leading by example 🖤 #thisIsMS

July is Disability Pride Month, and yeah, I’m a

July is Disability Pride Month, and yeah, I’m a day late bc energy isn’t unlimited and I live in the Disability Time Zone where we get there when we get there, thanks for holding the door 💁‍♀️

Disability Pride doesn’t mean I enjoying having MS - to be clear, zero stars. Do not recommend. 👎

Pride means refusing to be ashamed of my disabled body. It’s about taking up space and celebrating our whole selves and advocating for a more accessible world.

🔥Your move, society: Follow, hire, invite, include

🔥Tag the disabled baddie in your life so that we can follow and keep growing this community

#disabilityPride #thisIsMS

ID: me on a beach with my @rollzint rollator and a calendar that proves I’m mostly on time.

Up at 1am for a fire alarm 🚒 Up again at 5 for

Up at 1am for a fire alarm 🚒 Up again at 5 for my annual mri 😵‍💫

If anyone needs me, no you don’t 😴 #patientDays #thisIsMS

Did we drive 2 hrs just so I could visit a pink bo

Did we drive 2 hrs just so I could visit a pink bookstore? 🤔 Maybe.

Was it worth it? 💖 Obviously 📚 💕

#authorLife #thisIsMS

Make things accessible and don’t be weird 🤷‍♀️

#fallosophy #thisIsMS

If anyone needs me, I’ll be sitting in front of

If anyone needs me, I’ll be sitting in front of the freezer eating popsicles like it’s my job.

This kind of heat is hard on everyone but for ppl with MS, a symptom called Uhthoff’s phenomenon can really eff you up 🥵

Heat hijacks the MS nervous system turning minor glitches into full-on system failures. It’s not drama. It’s science. 🤔

Stay cool, Trippers. Rest isn’t lazy, it’s survival.

#thisIsMS

ID: screenshot of the weather app - all deep reds and oranges. Possibly a map of Hell.

Nothing says luxe like keeping your supplements in

Nothing says luxe like keeping your supplements in an antique wine box -
MS, but make it a vibe 🎩

How do you keep things chronically chic?

#fallosophy #thisIsMS

ID: pink peonies in a vase next to a long rectangular box full of things to keep my nervous system in check and my bones from turning to dust ☠️

Hypnosis for MS? Sounds woo, but the science check

Hypnosis for MS? Sounds woo, but the science checks out.

Link in bio for my review of @reveri app (and a sick discount 🤑)

#fallosophy #thisIsMS